News from HemoNED

On behalf of the board, Samantha Gouw, Karina Meijer and Mariette Driessens, and also the board office, Liesbeth Taal and Caroline van Veen we wish you a Merry Christmas and a h...

The HemoNED Foundation publishes an annual report containing data and trends from the HemoNED Register and the VastePrik app.

The HemoNED Annual report 2021 is now available, showing numbers and trends from the Dutch Hemophilia Registry and the VastePrik app.

From 1 April 2022, there has been a shift in the HemoNED Foundation board; prof. dr. Karina Meijer filled the vacant position of treasurer.

At the EAHAD 2022 congress HemoNED presented numbers on the use of emicizumab in the Netherlands.

Both national and international groups can apply to receive information from the HemoNED registry database.

From 2021-2022 the HemoNED Foundation collaborates with the National Health Care Institute in a project called 'Managing registries for expensive drugs'.

HemoNED published the Annual report 2020 with the latest numbers from the Dutch Hemophilia Registry!

From 1 January 2021, there has been a shift in board members of the HemoNED foundation.

The Dutch Hemophilia Registry was orally presented at the worldwide conference of the World Federation of Hemophilia.

The HemoNED Foundation published the Annual report 2019, showing numbers and figures about the Dutch Hemophilia Registry and the VastePrik app.

At 6 & 7 February 2020, HemoNED presented information about the VastePrik app at the European Hemophilia Congress in The Hague.

The first Annual report 2018 is published by the HemoNED Foundation.

On the EAHAD, a European Haemophilia Congress, the design and inclusion of HemoNED was presented.

On 8 June 2018 Kathelijn Fischer and Mariette Driessens participated on behalf of HemoNED in the haemophilia registries workshop organized by the European Medicines Agency.

HemoNED Foundation launches digital infusion log 'VastePrik'!

More than 60 future users are testing the App and web version (digital infusion log) during the whole month of February 2018.

Mid September the first Hemophilia Treatment Centers have started with the inclusion of participants for the HemoNED registry!

Sobi will also provide financial support to the HemoNED registry.