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News from HemoNED

HemoNED Annual report 2021 available!

HemoNED Annual report 2021 available!

The HemoNED Annual report 2021 is now available, showing numbers and trends from the Dutch Hemophilia Registry and the VastePrik app.

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Shift in HemoNED board members

Shift in HemoNED board members

From 1 April 2022, there has been a shift in the HemoNED Foundation board; prof. dr. Karina Meijer filled the vacant position of treasurer.

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HemoNED presented at EAHAD congress

HemoNED presented at EAHAD congress

At the EAHAD 2022 congress HemoNED presented numbers on the use of emicizumab in the Netherlands.

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Apply for information?

Apply for information?

Both national and international groups can apply to receive information from the HemoNED registry database.

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Managing registries for expensive drugs

Managing registries for expensive drugs

From 2021-2022 the HemoNED Foundation collaborates with the National Health Care Institute in a project called 'Managing registries for expensive drugs'.

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HemoNED Annual report 2020

HemoNED Annual report 2020

HemoNED published the Annual report 2020 with the latest numbers from the Dutch Hemophilia Registry!

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New board member HemoNED foundation

New board member HemoNED foundation

From 1 January 2021, there has been a shift in board members of the HemoNED foundation.

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HemoNED presented at WFH conference

HemoNED presented at WFH conference

The Dutch Hemophilia Registry was orally presented at the worldwide conference of the World Federation of Hemophilia.

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HemoNED Annual report 2019 available!

HemoNED Annual report 2019 available!

The HemoNED Foundation published the Annual report 2019, showing numbers and figures about the Dutch Hemophilia Registry and the VastePrik app.

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HemoNED at European Hemophilia Congress

HemoNED at European Hemophilia Congress

At 6 & 7 February 2020, HemoNED presented information about the VastePrik app at the European Hemophilia Congress in The Hague.

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HemoNED publishes first Annual Report

HemoNED publishes first Annual Report

The first Annual report 2018 is published by the HemoNED Foundation.

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HemoNED presented at European Haemophilia Congress

HemoNED presented at European Haemophilia Congress

On the EAHAD, a European Haemophilia Congress, the design and inclusion of HemoNED was presented.

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EMA workshop 'Haemophilia registries'

EMA workshop 'Haemophilia registries'

On 8 June 2018 Kathelijn Fischer and Mariette Driessens participated on behalf of HemoNED in the haemophilia registries workshop organized by the European Medicines Agency.

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Launch App VastePrik on World Hemophilia Day 2018

Launch App VastePrik on World Hemophilia Day 2018

HemoNED Foundation launches digital infusion log 'VastePrik'!

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Bètatest App has started!

Bètatest App has started!

More than 60 future users are testing the App and web version (digital infusion log) during the whole month of February 2018.

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Inclusion started!

Inclusion started!

Mid September the first Hemophilia Treatment Centers have started with the inclusion of participants for the HemoNED registry!

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Sobi supports HemoNED

Sobi supports HemoNED

Sobi will also provide financial support to the HemoNED registry.

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Novo Nordisk supports HemoNED

Novo Nordisk supports HemoNED

Novo Nordisk signed a contract to provide financial support to the HemoNED registry.

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Bayer sponsor HemoNED

Bayer sponsor HemoNED

Bayer will provide financial support for the development of the HemoNED registry and digital infusion log.

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Pfizer sponsor HemoNED

Pfizer sponsor HemoNED

Pfizer signed a sponsor contract to support the HemoNED registry.

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