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News from HemoNED

HemoNED Annual report 2023

The HemoNED annual report for 2023 is now available in both English and Dutch.

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HemoNED positive national assessment

HemoNED has received unanimous positive advice for inclusion in the national register for quality registrations. This is an important milestone for patients, healthcare provider...

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HemoNED wishes you a Merry Christmas

HemoNED wishes you a Merry Christmas

On behalf of the board, Samantha Gouw, Karina Meijer and Mariette Driessens, and also the board office, Liesbeth Taal and Caroline van Veen we wish you a Merry Christmas and a h...

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HemoNED Annual report 2022 available!

HemoNED Annual report 2022 available!

The HemoNED Foundation publishes an annual report containing data and trends from the HemoNED Register and the VastePrik app.

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HemoNED Annual report 2021

HemoNED Annual report 2021

The HemoNED Annual report 2021 is now available, showing numbers and trends from the Dutch Hemophilia Registry and the VastePrik app.

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Shift in HemoNED board members

Shift in HemoNED board members

From 1 April 2022, there has been a shift in the HemoNED Foundation board; prof. dr. Karina Meijer filled the vacant position of treasurer.

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HemoNED presented at EAHAD congress

HemoNED presented at EAHAD congress

At the EAHAD 2022 congress HemoNED presented numbers on the use of emicizumab in the Netherlands.

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Apply for information?

Apply for information?

Both national and international groups can apply to receive information from the HemoNED registry database.

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Managing registries for expensive drugs

Managing registries for expensive drugs

From 2021-2022 the HemoNED Foundation collaborates with the National Health Care Institute in a project called 'Managing registries for expensive drugs'.

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HemoNED Annual report 2020

HemoNED Annual report 2020

HemoNED published the Annual report 2020 with the latest numbers from the Dutch Hemophilia Registry!

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New board member HemoNED foundation

New board member HemoNED foundation

From 1 January 2021, there has been a shift in board members of the HemoNED foundation.

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HemoNED presented at WFH conference

HemoNED presented at WFH conference

The Dutch Hemophilia Registry was orally presented at the worldwide conference of the World Federation of Hemophilia.

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HemoNED Annual report 2019 available!

HemoNED Annual report 2019 available!

The HemoNED Foundation published the Annual report 2019, showing numbers and figures about the Dutch Hemophilia Registry and the VastePrik app.

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HemoNED at European Hemophilia Congress

HemoNED at European Hemophilia Congress

At 6 & 7 February 2020, HemoNED presented information about the VastePrik app at the European Hemophilia Congress in The Hague.

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HemoNED publishes first Annual Report

HemoNED publishes first Annual Report

The first Annual report 2018 is published by the HemoNED Foundation.

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HemoNED presented at European Haemophilia Congress

HemoNED presented at European Haemophilia Congress

On the EAHAD, a European Haemophilia Congress, the design and inclusion of HemoNED was presented.

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EMA workshop 'Haemophilia registries'

EMA workshop 'Haemophilia registries'

On 8 June 2018 Kathelijn Fischer and Mariette Driessens participated on behalf of HemoNED in the haemophilia registries workshop organized by the European Medicines Agency.

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Launch App VastePrik on World Hemophilia Day 2018

Launch App VastePrik on World Hemophilia Day 2018

HemoNED Foundation launches digital infusion log 'VastePrik'!

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Bètatest App has started!

Bètatest App has started!

More than 60 future users are testing the App and web version (digital infusion log) during the whole month of February 2018.

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Inclusion started!

Inclusion started!

Mid September the first Hemophilia Treatment Centers have started with the inclusion of participants for the HemoNED registry!

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