News from HemoNED
HemoNED Annual report 2023
The HemoNED annual report for 2023 is now available in both English and Dutch.
Read moreHemoNED positive national assessment
HemoNED has received unanimous positive advice for inclusion in the national register for quality registrations. This is an important milestone for patients, healthcare provider...
Read moreHemoNED wishes you a Merry Christmas
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On behalf of the board, Samantha Gouw, Karina Meijer and Mariette Driessens, and also the board office, Liesbeth Taal and Caroline van Veen we wish you a Merry Christmas and a h...
Read moreHemoNED Annual report 2022 available!
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The HemoNED Foundation publishes an annual report containing data and trends from the HemoNED Register and the VastePrik app.
Read moreHemoNED Annual report 2021
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The HemoNED Annual report 2021 is now available, showing numbers and trends from the Dutch Hemophilia Registry and the VastePrik app.
Read moreShift in HemoNED board members
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From 1 April 2022, there has been a shift in the HemoNED Foundation board; prof. dr. Karina Meijer filled the vacant position of treasurer.
Read moreHemoNED presented at EAHAD congress
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At the EAHAD 2022 congress HemoNED presented numbers on the use of emicizumab in the Netherlands.
Read moreApply for information?
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Both national and international groups can apply to receive information from the HemoNED registry database.
Read moreManaging registries for expensive drugs
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From 2021-2022 the HemoNED Foundation collaborates with the National Health Care Institute in a project called 'Managing registries for expensive drugs'.
Read moreHemoNED Annual report 2020
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HemoNED published the Annual report 2020 with the latest numbers from the Dutch Hemophilia Registry!
Read moreNew board member HemoNED foundation
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From 1 January 2021, there has been a shift in board members of the HemoNED foundation.
Read moreHemoNED presented at WFH conference
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The Dutch Hemophilia Registry was orally presented at the worldwide conference of the World Federation of Hemophilia.
Read moreHemoNED Annual report 2019 available!
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The HemoNED Foundation published the Annual report 2019, showing numbers and figures about the Dutch Hemophilia Registry and the VastePrik app.
Read moreHemoNED at European Hemophilia Congress
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At 6 & 7 February 2020, HemoNED presented information about the VastePrik app at the European Hemophilia Congress in The Hague.
Read moreHemoNED publishes first Annual Report
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The first Annual report 2018 is published by the HemoNED Foundation.
Read moreHemoNED presented at European Haemophilia Congress
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On the EAHAD, a European Haemophilia Congress, the design and inclusion of HemoNED was presented.
Read moreEMA workshop 'Haemophilia registries'
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On 8 June 2018 Kathelijn Fischer and Mariette Driessens participated on behalf of HemoNED in the haemophilia registries workshop organized by the European Medicines Agency.
Read moreLaunch App VastePrik on World Hemophilia Day 2018
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HemoNED Foundation launches digital infusion log 'VastePrik'!
Read moreBètatest App has started!
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More than 60 future users are testing the App and web version (digital infusion log) during the whole month of February 2018.
Read moreInclusion started!
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Mid September the first Hemophilia Treatment Centers have started with the inclusion of participants for the HemoNED registry!
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