Welcome to the website of HemoNED, the nationwide registry for people with hemophilia or associated disorders in The Netherlands. On our website you will find more background information and explanation about the registry and the digital infusion log (app): what are the objectives, which parties are involved, and who has access to the collected information.
The HemoNED annual report for 2023 is now available in both English and Dutch.
Read moreHemoNED has received unanimous positive advice for inclusion in the national register for quality registrations. This is an important milestone for patients, healthcare provider...
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On behalf of the board, Samantha Gouw, Karina Meijer and Mariette Driessens, and also the board office, Liesbeth Taal and Caroline van Veen we wish you a Merry Christmas and a h...
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The HemoNED Foundation publishes an annual report containing data and trends from the HemoNED Register and the VastePrik app.
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HemoNED is the nationwide registry for people with hemophilia and associated disorders in The Netherlands. The registry is managed by the HemoNED Foundation, a joint initiative of hemophilia practitioners and the patient organization.
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The HemoNED registry offers hemophilia practitioners the opportunity to monitor their patients, their treatments and the treatment results in a clear and convenient manner.
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We are in the process of developing a digital infusion log for patients, to be used as an app on their smartphone or tablet, which can be used to easily record gifts and bleedings.
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