Publications

The information from the HemoNED registry is, among others, used for scientific research. An overview of the articles published in (scientific) journals or abstracts presented at international conferences can be found below. 

2022
Taal EM, Goedhart G, Driessens MHE, Gouw SC, Beijlevelt-van der Zande M, Fischer K, Kruip MJHA, Laros-van Gorkom BAP, Meijer S, Stein-Wit M, Van der Meer FJM. Monitoring of emicizumab using a patient registry. Poster EAHAD conference, virtual summit, Februari 2022.

2020
Driessens MHE, Goedhart G, Taal EM, Fischer K, Fijnvandraat K, Kruip MJHA, Laros-van Gorkom BAP, Schipper J, Tamminga RYJ, Uitslager N, Van der Meer FJM. The Dutch Haemophilia Registry HemoNED - Building an Ecosystem. Oral presentation WFH conference, Virtual summit, June 2020.

Goedhart G, Taal EM, Fischer K, Driessens MHE, Van der Meer FJM and HemoNED Steering Committee. Validation of patient reported bleeds. Poster EAHAD conference, The Hague, February 2020.

2019
Goedhart G, Fischer K, Driessens MHE, Van Beurden KM, Van der Meer FJM and HemoNED Steering Committee. Towards evaluation of hemophilia therapies in the Netherlands: a nationwide patient registry and digital infusion log. Poster EAHAD conference, Prague, February 2019.

2017
Goedhart G, Fischer K, Driessens M, Van der Meer FJM. Dutch hemophilia patient registry and digital infusion log. Poster EAHAD conference, Paris, February 2017.