Publications
The information from the HemoNED registry is, among others, used for scientific research. An overview of the articles published in (scientific) journals or abstracts presented at international conferences can be found below.
2025
Taal EM, Van Veen CME, Brands MR, Beijlevelt M, Driessens MHE, Eckhart CL, den Exter PL, Kruip MJHA, Laros-van Gorkom BAP, Meijer S, Stein-de Wit MA, Meijer K, Gouw SC. Real-world bleeding rates of people with severe hemophilia A on emicizumab treatment in the Netherlands with and without a history of an inhibitor. Poster EAHAD congres, Milaan February 2025.
2024
Van Veen CME, Taal EM, Brands MR, Driessens MHE, Kruip MJHA, Fischer K, Beijlevelt M, Gouw SC. Development of a core data set for individual treatment plans for patients with congenital bleeding disorders. Poster EAHAD congres, Frankfurt February 2024.
Brands MR, Taal EM, Driessens MHE, van Veen CME, Kruip MJHA, den Exter PL, Laros-van Gorkom BAP, Stein-de Wit MA, Fischer K, Meijer S, Meijer K, Beijlevelt M, Fijnvandraat K, Gouw SC. Real-world bleeding rates on emicizumab using digital treatment diary data. Poster EAHAD congres, Frankfurt February 2024.
2023
Taal EM, Driessens MHE, Beijlevelt-van der Zande M, den Exter PL, Fischer K, Kruip MJHA, Laros-van Gorkom BAP, Meijer S, Stein-Wit M, van Veen CME, Meijer K, Gouw SG. The HemoNED registry for persons with bleeding disorders in the Netherlands: An update of the Dutch experience. Poster EAHAD congres. Mancester Februari 2023.
Gouw SC, Driessens MHE, Meijer K, van Veen CME, Taal EM, Brands MR Het digitale logboek om de behandeling te verbeteren. Poster NEM congres, Januari 2023.
2022
Taal EM, Goedhart G, Driessens MHE, Gouw SC, Beijlevelt-van der Zande M, Fischer K, Kruip MJHA, Laros-van Gorkom BAP, Meijer S, Stein-Wit M, Van der Meer FJM. Monitoring of emicizumab using a patient registry. Poster EAHAD conference, virtual summit, Februari 2022.
2020
Driessens MHE, Goedhart G, Taal EM, Fischer K, Fijnvandraat K, Kruip MJHA, Laros-van Gorkom BAP, Schipper J, Tamminga RYJ, Uitslager N, Van der Meer FJM. The Dutch Haemophilia Registry HemoNED - Building an Ecosystem. Oral presentation WFH conference, Virtual summit, June 2020.
Goedhart G, Taal EM, Fischer K, Driessens MHE, Van der Meer FJM and HemoNED Steering Committee. Validation of patient reported bleeds. Poster EAHAD conference, The Hague, February 2020.
2019
Goedhart G, Fischer K, Driessens MHE, Van Beurden KM, Van der Meer FJM and HemoNED Steering Committee. Towards evaluation of hemophilia therapies in the Netherlands: a nationwide patient registry and digital infusion log. Poster EAHAD conference, Prague, February 2019.
2017
Goedhart G, Fischer K, Driessens M, Van der Meer FJM. Dutch hemophilia patient registry and digital infusion log. Poster EAHAD conference, Paris, February 2017.