Today is World Hemophilia Day!

17/04/2025

Today, April 17, 2025, we celebrate World Hemophilia Day. This year's theme is "Access for All: Women and Girls Bleed Too." Worldwide, women and girls with bleeding disorders are still underdiagnosed and inadequately supported.

A few years ago, it was common practice to automatically diagnose women with low Factor VIII or Factor IX levels as 'carriers,' even if these levels were ≤ 0.4 IU/ml. In 2024, HemoNED made the important decision to reclassify carriers of hemophilia with low factor levels (factor levels ≤ 0.4 IU/ml) to mild hemophilia. By the end of 2023, the register included 157 women with hemophilia carrier status and 35 women diagnosed with hemophilia.

In the 2024 annual report, which will be released next month, the reality will be better mapped out. We hope to achieve better care for women with hemophilia through targeted treatment and support, including greater understanding of their situation.